‘Butterfly skin’ condition left man, 21, covered in scars and open wounds with no cure

‘Butterfly skin’ condition left man, 21, covered in scars and open wounds with no cureThe rare condition has slowly fused his fingers together but he’s determined to continue his bodybuilding journeyCommentsNewsSamantha Leathers Senior Money & Lifestyle writer01:07, 17 Apr 2026View 3 ImagesPeter has Recessive Distrophic Epidermolysis Bullosa (RDEB) and hopes researchers can find a cure(Image: Jam Press/@pepo.workout)Peter Mesits has a rare condition that leaves his skin incredibly sensitive to touch, tearing into open wounds and blisters at the lightest bit of friction. The disorder also affects his mouth and oesaphagus, leaving blisters whenever he has to brush his teeth.‌The 21 year old was diagnosed with Recessive Distrophic Epidermolysis Bullosa (RDEB) as a young child - it's also known as 'butterfly skin'. Now as an avid gym fanatic, he hopes to spread awareness and has built up a following online, sharing his day-to-day life with the condition.‌Peter explains on his Instagram that the condition affects a gene that normally helps “glue the skin together”. The disorder means this gene doesn’t work properly and leaves the skin extremely fragile.‌When the skin blisters or tears open from minor friction, the body tries to heal it but often leaves behind severe scarring that can cause deformities. In Peter’s case, the fingers on his hands have been fused together.View 3 ImagesThe condition leaves wounds on Peter's skin and also affects him internally(Image: Jam Press/@pepo.workout)Peter told creatorzine.com that bathing can be the hardest part of his day. He said: “Bathing is one of my biggest struggles because I have to change bandages every day. When I bathe I have to slowly take off the bandages one by one.‌"Sometimes they stick into my open wounds and I have to tear it out of the wounds with a medical saline irrigation spray. When I sit in the bathtub the water can burn my wounds and it hurts like hell, and when I shower it feels lik...